What About the Future

What About the Future

This is one of the most important questions you will have, but it is often one of the hardest questions to answer with any certainty.

After you have gone home with your baby, it is likely that you will be offered an appointment to come back to see the paediatrician or neonatal consultant to monitor and discuss your baby’s progress. Some babies with HIE recover fully and have no long term difficulties while others may develop difficulties that require help and support from healthcare professionals, such as physiotherapists and speech and language therapists. Each baby is unique and the care they receive will be tailored to their needs. The number and frequency of appointments will depend on your baby’s needs.

As HIE is a complex condition, it can take time to discover your baby’s future and possible needs. The medical staff looking after your baby will gradually be able to put together the results from the different investigations your baby has undergone to give a better understanding of what the future may hold. This, along with information about things you notice in your baby’s development at home will be vital in planning the future.

A developmental assessment may be carried out on your baby at 18 months to 2 years of age and sometimes sooner than this depending on the protocols for the unit that your baby is being seen at. The healthcare professional will carry out some activities with your toddler which provides information on their physical, motor, sensory and cognitive development. This assessment can help to provide a better understanding of how your toddler is developing and can help to alleviate concerns that you may have.

Later in childhood your baby could have problems with learning, thinking, speaking (cognitive problems) and problems with walking or movement (sometimes called cerebral palsy).