Palliative Care & Bereavement

Palliative Care & Bereavement

Palliative Care

For some babies who are severely affected with HIE, all the available treatments still might not be enough to help them. The doctors and nurses might talk to you about palliative care. This is the care babies and families receive when a baby is recognised as having a life limiting condition. Palliative care aims to keep your baby comfortable and control any symptoms. Families will also be offered support, even after their baby has died. You should be able to choose where your baby receives palliative care; it may be in a quiet private place in the hospital or in a hospice for children or babies, which can provide a more home like surrounding, or you may prefer it to be in your own home.

Bereavement

Every parent’s experience is individual and every circumstance is different. Parents whose baby has died have said that the grief is deeper and lasts much longer than many people realise. Parents may experience a mix of emotional and physical reactions following the death of a baby, some of which you may not expect. Please see the support section on this website for further information on national charities.